Your site has been helpful in provided a sense of peacebut an extra insight would be super encouraging. I just want to know what things I will see change so that I dont look past the change in my valve and miss my window to get the valve replaced. In your experience, can patients with BAV go a lifetime without having AVR? I got checked out by my GP who detected a murmur then had all the other heart related tests and was diagnosed with BAV with stenosis and regurgitation. Bethesda Conference reports), even though there is no certain link between sports and the aorta enlargement. Im paranoid to exercise too much for fear that I will do damage to the valve. The other theory is that there is a structural problem that leaves the aortic wall weak. You might be wondering, with no disrespect to the great people of Cleveland, why Schwarzenegger, who surely has access to the finest hospitals under the sun, would choose to have surgery there. Bicuspid Aortic Valve - Medscape The aortic valve allows oxygen-rich blood to flow from the heart to the aorta. Options for operation These are the data I got in my last MTB race. Athletes in this circumstance should collect opinions from their doctor(s) and make very careful considerations before returning to exercise. I take bisoprolol (low dose) and my pressure is currently normal . I have a 15 year old son with a BAV, Aortic stenosis, Noderate regurgitation and dilatation of his ascending aorta. At my last evaluation, my aorta measured between 4.3-4.5 cm, depending on where the measurement was taken, and the regergitation was classified in the moderate range. Thats the main reason for choosing a tissue valve in my case. I was concerned about his cough last weekend so I was assessing his lungs with my stethoscope when I heard a very pronounced diastolic murmur at his 3rd ICS. Bicuspid aortic valve with Marfan and other HTAD when the ascending aorta is dilated >45 mm. Since you have the ready info about your aortic sizes over time, I will guess that you have a doctor or cardiologist that you are working with. I do not feel any of the effect of my condition when I run or workout. No LV chamber chamber dialiation, normal LV wall thickness, good LC systolic function, No regional LV wall motion abnormality. The ST junction and ascending aorta are mildly dilated max 35mm. Dr. Larry, I do appreciate your insightful article very much. I was training for 11th marathon at the time (over the past 13 years). Hey has been physically active with restrictions of no contact sports, and no isometric exercise. Thanks very much. Bobbie. Bicuspid aortic valve is the most common congenital cardiovascular anomaly, occurring in 1-2% of the population. But neither of these procedures are durable for the long-term. I have a St. Judes Bovine valve now. The incidence of bicuspid aortic valve and complications. I want to continue weightlifting .. what is your opinion about this ? I have been doing this for the last 5-6 years now and am hopeful it can continue. Star Jones. I am 46 years old today, 22x marathoner, 4x Ultra (50 miles) and 5x natural fitness competitor. In practice, the indications for aortic valve replacement for severe aortic stenosis or severe aortic regurgitation are straightforward and uncontroversial. I am a keen weightlifter, which is the basis of this post. Abstract. Brave Dublin teen Sinead fights back from heart surgery to make beloved Website designed by Gatorworks. I have also had a stress test, which showed no issues at all. There, they detected I had a bicuspid aortic valve." This meant the valve which controls the flow of blood from the heart's left-ventricle chamber to the main artery had only two flaps instead . Have you heard about the PEARS procedure? 5 months ago was diagnosed with severe AR and 5 cm long aneurism (root 3.0 cm, sinusi valsave 4.3cm, ST 3.6cm, ascending aorta 3.6cm) on regular yearly checkout, with no syptoms. I look forward to hearing from you. This is amplified when I sit with my feet up (male cross-legged) because of the tingling/numbness in feet. I was disappointed [when I was diagnosed]. As I have aged I have upped the reps to 15 or more and two or three sets max, sometimes doing a set or two of 5 reps with heavier weights. And he never had any symptoms and played competitive soccer since he was 6. Bicuspid Aortic Valve: Symptoms, Diagnosis & Treatment, Biological Tissue Valves: Pig, Cow, Horse & Human, The Patient's Guide To Heart Valve Surgery. I understand that we are only beginning to learn about the use of ARBs in patients who DO NOT have connective tissue disorders like Marfans syndrome. The numbness/tingling has me constantly worriedand the slight chest pains have me always thinking is that my BV or Aorta causing issues?. The HAART 200 is an innovative device that helps in the repair of BAV, allowing patients to avoid aortic valve replacement. The more common form of bicuspid aortic valve occurs in a valve with three cusps with . In your case, though, the infection might well influence the healing process. We just dont know. Bicuspid Aortic Valve and Congenital Aortic Stenosis in Children I am playing basketball I am doing 100m and 200m and swimming . My 28, got a BAV with mild stenosis and a aortic root measuring 40mm. Here are stories of some celebrities with this condition: Not everyone who has a congenital heart defect knows about it, so its important to be vigilant about the health of your heart. I am concerned about removing the coronary arteries and re attaching them again etc. What have I observed and learned in the quarter century since? And I dont know if my Cardiologist follows the same guidlines, but I dont think hes under the impression that Im any kind of athlete either. Often times, especially for patients with tissue heart valve replacement devices, the valve simply wears out. Its weird because sometimes when Im resting I can feel a little weird fluttering.. with valve area of 1.4 cm2 and aorta of 4.1 cms The valve may also become stiff due to calcium deposits on the leaflets over time. mod-severe regurgitation BAV was diagnosed in 196 newborns (prevalence, 0.77%), with a male-female ratio of 2.1:1. I do not do any kind of sport and I want to have healthy life at make sure my situation not getting worse and I weight 90 kg. Soccer is his only sport and his passion- he plays on his high school team and a travel team. Okay, thats greatbut I left feeling uncomfortable with the diagnosis. My resting HR is 60-70 BP 110-70, according to doctors have no tissue problems, never had hypertension and was told that I was born with weak threskupid valve. Its now 8 months after surgery and Im pretty much back in my every day life, was even granted to attend my pilot medical tests which are due in 2 weeks. Do you think the jiu-jitsu (e.g. Your surgeon will be in a good position to understand the exact details of operation that might be relevant when deciding whats safe.. On March 30, 2018, we learned that Arnold Schwarzengger required a second heart surgery. Your email address will not be published. My problem is a perpetual fear and worry about having this diagnosis and having to someday undergo open heart surgery. A CT scan made the diagnosis. His doctor recommended he see a pediatric cardiologist within 1-2 weeks but when I called they cant get him in until April 14th. I appreciate your response, thank you for taking the time to write me back. However, is there any advantage to having them screen in their first decade of life, if they are not showing any symptoms? I was running 9 to 10 minute miles. Weight-lifting is only one example, but others would include golf, bowling, shooting, etc. "I have heart disease, and I found out about five or four years ago, the singer, now 49, told PEOPLE in 2008. No one loves life more than I do, read the statement. Almost 15 years ago skilled surgeons replaced my aorta valve with a new replacement valve. It has a male predominance and often occurs in multiple members of the same family, suggesting that it may have an autosomal dominant inheritance, perhaps with variable penetrance. Lynn. The false lumen extending into the abdominal aorta was left since the point of origin in the ascending aorta was repaired. I understand its strenuous activity but if Im for example bench pressing it will get harder for me to put it up at the 8th rep.. Be specific. Frontiers | Transcatheter Aortic Valve Implantation in Sievers Type 0 I have found in my case( an athlete with bav)the typical response from doctors is, thats life, you cant do it anymore, be grateful for what you have. Benefits: long-term durability. For healthy individuals who have BAV with no other heart or aortic problems, follow-up imaging with echocardiogram and/or CT could probably be undertaken annually, or perhaps less often once stability is ensured. I feel like 95% of other people my doc sees are just happy to get back to their normal life which doesnt include pushing their bodies to extreme limits. 1. Aortic valve stenosis: Your aortic valve narrows, reducing blood flow through it. His cardiologist said he cant play. I was born with a BAV and but I didnt notice performance issues until the Summer of 2016, so I brought myself to the doctor. Dublin teen to compete in Irish Dancing World Championships after heart Catch up on the years best movies, whether in theaters or now streaming at home. what recommend me? We have contacted the Cleveland Clinic to learn more and will report back soon. I did cardio training 3 times a week and weight training twice a week for 60 years. His cardiologist told him to focus on basketball. I think its reasonable to think of things this way. Nwankwo Kanu (@papilokanu), the Olympic Gold Medalist (Soccer) suffered from Aortic Valve Defect. Depending upon the size of the prosthetic valve, there is so e built-in obstruction to blood flow that is e aggregated during exercise. Apparently I also have a mildly enlarged IVC as well as mildly enlarged left and right atria. I cant do that justice here. I made appointment with my cardio, to clear that up, dont worry :). We briefly talked about the Ross procedure vs mechanical valve replacement. Celebrities Who Have Opened Up About Heart Health - Peoplemag I believe that many Cardiologist are not as experienced regarding how to advise high-performing athletes (even older ones like us). I didnt get it.". She learned she needed an aortic valve replacement in 2009 and underwent open heart surgery, receiving a mechanical valve to replace her damaged aortic valve. I am 6ft 3 . My son at 11 months was diagnosed with BAV. looking forward for healthy life without surgery any possibilities??? 4.2cm dilated aortic root Latest Advances in the Treatment of Bicuspid Aortic Valve I think we should have a choice??? Less than one month ago Schwarzenegger was (virtually) hosting the Austrian World Summit of the Schwarzenegger Climate Initiative, which introduced speakers like Prince Charles, Jane Goodall, and Pakistani Prime Minister Imran Khan. Schwarzenegger was born with a condition known as bicuspid aortic valve, in which the heart's main artery, the aorta, has only two cusps instead of three.If untreated, it can lead to blocked blood . Also, my next appointment is, unfortunately the week after my next marathon (which I will be pacing and not racing). Jeff/Doc, Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. The rest of the aorta is normal (visualized to just above the bifurcation in the abdomen). The procedure was performed at the Cleveland Clinic. Bicuspid Aortic Valve - Nationwide Children's Hospital Thanks for the enlightening article. Schwarzenegger was born with a condition known as bicuspid aortic valve, in which the heart's main artery, the aorta, has only two cusps instead of three. Glad to hear that youve found a surgeon and settled on a plan. While she ended up being okay, she advised other women to be more cautious. Could you express your opinion on this issue? Im 37 years old male, live in Croatia, 191 cm, 94 kg, very athletic, practicing various sports my whole lifetime. Periodic re-evaluation with echocardiogram and/or CT scanning is used for most patients in this circumstance. Not only the degree of aortic regurgitation, but also the degree of enlargement of the nearby aorta, should be taken into consideration when settling on limits for exercise. I suspect (and hope) you will say that the latest recommendations say no restrictions for someone like me but I havent seen yoga specifically mentioned. To me, cardiologists are not sports people and air on being absolutely over cautious. I know I will need it replaced. I have appointment with a cardiologist on Friday but in the meantime i would like to know weather in case of surgery a replacement of the valve is definitely necessary or my condition still allows some options for a surgery without replacement. Most patients spend about a week in the hospital after operation and then are able to go home. Sbp. Males are affected 3:1 compared to females. A normal aortic valve looks like the Mercedes logo, a circle broken up by three lines that meet in the middle. I was just curious if there any way to know if my valve is affecting my times at all? Bicuspid aortic disease occurs when a defect is present in the valve that opens and shuts to allow blood flow from the heart through the aorta. What is your opinion about dissection in low/controlled messures? Log in, September 26, 2013 By Larry Creswell, MD 155 Comments. They ruled out Marfans syndrome because his aorta was dilating. The value of CT/MRI comes when a millimeter or two makes a difference in treatment, restrictions, surgery, etc. A lot of people have it, she told Access Hollywood in 2009. Yes, as the patient grows, so will the aorta.and eventually you get to the traditional >40 mm cutoff where activity restrictions are advised. Mayo Clinic Q and A: What is a bicuspid aortic valve? What is the average life span of a tissue valve? Starnes implanted a healthy human tissue valve and said at the time, This will not limit Arnold Schwarzenegger in any way when he recovers.. Sadly, we dont have a crystal ball, though to know what the future holds for any particular individual. Aortic Stenosis To revist this article, visit My Profile, then View saved stories. Business, Economics, and Finance. You would never know meeting these celebrities that they had a CHD. Your sons cardiologist would seem to be in the best position to offer specific advice. 2 Such features need to be considered before surgical intervention. My cardiologist has advised that while marathon running is out, shorter runs (up to 6-8 miles) and pilates are both fine for now. This valve repair option is one that might best be pursued at a center that specializes in this problem. Congrats! Thats probably what the doctors are watching for. And my wife is screaming at me every time I try to exercise :)). Have completed an excercise stress test and signed off as ok on reaching level 13. Im 31 and 1 years ago i found im BAV with modrate AI. The mechanical valve conduit replaces the valve with a mechanical valve and the aorta with a Dacron fabric tube. The doctor allows me to do moderate sport defined by her like not 20k each day; 20k per week should be fine. For these individuals, provided there is no other relevant heart disease, it may be appropriate to have follow-up echocardiogram and/or CT scanning every 2 years. In my early 40s I thought that I was getting out of breath more than I should and eventually began to feel weak or nervous during a game, but only on Sunday. I was training for a marathon when I was 62 years old and diagnosed with BAV with severe regurgitation. It has allowed me to do the thing I enjoy doing in life. As Schwarzenegger previously had two cardiac procedures, it is possible that Arnold may have received aTAVR using a Valve-in-Valve approach to replace his failing aortic tissue valve that was implanted in 1997. I had AVR 3 years and 4 months ago. The valve can gradually become harder to open or leakier . Very often, the specialists office will make note of the patients problem and make appropriate decisions about whether routine or urgent appointment scheduling is needed. According to reports (and my new cardiologist), this congenital variation . Push for earlier date? Bicuspid Aortic Valve | Johns Hopkins Medicine The material on this site may not be reproduced, distributed, transmitted, cached or otherwise used, except with the prior written permission of Cond Nast. Currently complete in 5-a-side football and have done for life. Now at 74, and after having AVR I am 10 weeks into the dont lift more than 10 pounds restriction. Perhaps meeting with a heart surgeon now, even if operation is not yet needed, might provide a forum for discussion about the options for surgery, the technical issues, and recovery. If youre questioning the recommendations youve received, perhaps a second opinion might be helpful. Most people require treatment once symptoms develop. Given that risk, the current American guidelines recommend screening those children with echocardiogram to identify affected children. Open heart surgery is sometimes the best option, but it is not always the only option. There are 2 broad categories of heart valve substitutes that can be used to replace the human aortic valve: mechanical valves or bioprosthetic (tissue) valves. I currently run 40 -50km a week and do two 2 hour intensive yoga sessions a week. The aortic root is moderately dilated (max 46mm sinus to opposite commissure but you can measure 48off axis). lifting a max bench of 150 lbs Regarding activity restrictions, you would do best to rely on the advice of your sons doctor(s) who will be in the best position to know the relevant specifics. The procedure was performed at the Cleveland Clinic. I can not be on anticoagulant medications on the fire department. Health eCooking is a registered trademark of Baldwin Publishing, Inc. Cook eKitchen is a designated trademark of Baldwin Publishing, Inc. Any duplication or distribution of the information contained herein without the express approval of Baldwin Publishing, Inc. is strictly prohibited. I have had scans and echos for as long as I can remember and have never been on medication nor has this condition stopped me from doing anything I have wanted. Advice in this area must be individualized with your doctor(s). Thank you sincerely for your time and information. This might reasonably translate into some measurable improvement related to physical exercise. Answers to your questions. In short, I consider myself to be a high level athlete. Im not looking forward competitions nor marathons. My cardiologist (London Heart Hospital) gave me green light to moderate sport activities (no marathon and weight lifting). Congenital heart issues affect approximately 40,000 people born each year in the U.S. and are one of the most common types of birth defects. Reply. and my valve is working quite well (mild aortic regurgitation). Hes gained 25 pds . This visit we were told it could be a few years before anything needs to be done. "Weve gotten a lot closer and weve learned each other on a whole different, deeper level, she told PEOPLE in 2015. James Cameron checks in from Pandora with a status report. Still no stenosis or regurgitation, aorta now 35 mm, he is 6 ft, 150 pounds. In March 2019, media outlets hailed two new studies on transcatheter aortic valve replacement (TAVR) as potentially signaling the beginning of the end of open heart surgery for aortic stenosis. Surgeon Q&A: What is TAVR Valve-in-Valve? The confusing thing I hear is some cardiologists telling BAV people not to life over x lbs. Any words you have for us would be greatly appreciated. It has served me well enabling me to live the vigorous, full, complete life you are all so familiar with. Center for Bicuspid Aortic Valve Diseases | Penn Medicine The guidelines do not address the frequency of surveillance for individuals with BAV and no enlargement of the aorta. running? It was reported on April 5 that the 75-year-old Jagger underwent successful transcatheter aortic valve replacement (TAVR) at an undisclosed hospital in New . I had an echo because of a scuba diving accident and was discovered to have a BAV (no PFO). I used to do quite some running 10 years ago (still at amateur level), I was doing lots of 10k and 20k and even I managed a marathon in 3h:26min (but at that time I didnt know about the BAV). My AVG HR on a daily basis is between 61-64 (that includes a workout where it exceeds 150 at times), I have no intentions of racing this marathon, simply crossing the FINISH line, and my heart rate will not exceed 150 I will walk when/if necessary. Get your act together, Columbus! Im followed by a cardiologist who only says not too much weight lifting..
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